Our new life.

I thought I would start a blog about my baby girl's cancer battle. I have so many friends and family that live far away and I am not able to connect with everyone personally, so I thought this might be a good way to keep everyone updated on what is going on in our new world. Since I was little, I have always loved writing. It is the best way I communicate. I find it calming to get my thoughts down on paper, so hopefully this will serve 2 purposes- keep the people we love connected and help to keep me sane! I will try to add to it as things happen and as Nora's journey continues...

Nora was only diagnosed about 2.5 weeks ago, so this is all very new to us. We learn more about her disease everyday, but her plan moving forward is in motion. Her doctor's at CHP have been nothing short of amazing and have made her case a priority in every way they can. (She started her first chemo treatment just 4 days after being admitted to the hospital). It is still shocking to write that.

Morning after her first 2 treatments

Neuroblastoma is not a very common type of pediatric cancer, but her doctors have experience in treating it and have been very hopeful about her prognosis. So far, you wouldn't even know our little girl has had 4 bags of chemo, 2 blood transfusions, numerous blood products, a CT and MIBG scan, 2 bone marrow biopsies, a biopsy of her tumor, and a broviac port implanted into her chest (all in a 10 day stay at CHP). She has also had a hearing test, 2 echocardiograms (chemo can weaken hearing and heart functionality), and had several IV's started.

We are extremely hopeful for a full recovery and we appreciate all the prayers from loved ones and strangers alike who care about our baby girl and want to see her live through this as much as we do. She is our brave little warrior, and as much as it breaks my heart everyday to watch her fight this battle, I know she can do it. She is my inspiration and she is going to change the world. I just know it.